Personal MRSA Stories
Here you will find personal stories of experience with infection, written by MRSA patients and their loved ones. If you are interested in having your story published here, email . You need not provide any identifying information if you do not want to, and all copyrights will of course remain yours. I cannot tell you how many people have told me that this is very helpful to them to be able to read these stories, I hope you will consider having yours, or a link to yours, here as well. Also, if you are interested in keeping a blog about your MRSA experience, or just your daily life while living with MRSA or another Superbug, please email me as well, I would love to talk about hosting it for you.
Submitted to MRSA Resources:
Marshall Jones - An MRSA Survival Story, PDF
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Marshall contracted his MRSA infection through an ingrown hair in his neck after a shave at home. He was an undiagnosed diabetic at the time, and the infection entered the epidural space of his spine, and then his bloodstream before he was hospitalized.
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Both of Denise’s two young daughters contracted MRSA a year apart through tympanostomy (ear tube) surgeries.
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Tony contracted MRSA during surgery for a broken leg. He has been very instrumental in the fight for victims rights and hospital rate disclosure in the UK (MRSA Support UK), and is working around the world for the same cause.
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Peg contracted MRSA in a leg wound after cutting herself shaving with her own razor.
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Michelle’s husband came home from Iraq with MRSA boils, and the bacteria was passed throughout his household.
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Francine’s 13 year old athletic son acquired CA-MRSA in his bone (osteomyelitis).
Rhoda’s daughter contracted MRSA while battling addiction, Graves Disease and Fibromyalgia.
Novena acquired MRSA after laparoscopic surgery.
External Links to MRSA Experiences and Stories:
Jill and Bella Moss’s Story
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Bella was the first dog known to fall victim to the MRSA bacteria.
Ricky Lannetti
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Did not survive CA-MRSA, stemming from a small pimple - His mother, Theresa, along with Francine Jackson are working very hard toward community awareness of CA-MRSA, especially in athletes.
Helena Gibson
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survived Necrotizing Fasciitis
Trina Hayes
20 responses so far ↓
maria pipkins // Jan 4, 2007 at 7:13 pm
i have recentky been diagnosed with mrsa. but haven’t been in a hospital for over 9yrs. i was wondering could i have contracted this disese when i had my hysterectomy 9 yrs ago or could i contracted it through my work environment. i work for a company that uses alot of chemicals and every times o goto work after it rains i breakout.i’ve worked for this company for 8 yrs. my doctor said it could be a major part of my illness. i would like a second opinion.
Rhoda // Mar 10, 2007 at 3:26 pm
I do love hearing the words “Survivor of MRSA!”
christal // Mar 27, 2007 at 8:20 pm
i was diagnoised with mrsa and a staph infection after my hernia repair about a month ago. i had to go back in to surgery 6 days after my first one to be cleaned out becuase of the staph infection and i was later told that i also had mrsa. i have been wondering is there any long term effects that i should be consider about because im working on my nursing career and im wondering if that is going to effect that.
Tonya // May 31, 2007 at 1:06 pm
I have had 7 or 8 MRSA outbreaks since my daughter was born and she is 7 months old. My 23 month old has had it twice and my husband has had it 3 or 4 times. My sons and mine are in the groin area and my husband is under his arm. We all got on antibiotics (they were on Bactrim and I was on Cephlex, I’m allergic to Sulfa). We also did the bactroban ointment in the nose. We also have been disinfecting the whole entire house by spraying Lysol on door handles and light switches and changing our sheets regularly. So far my son and my husband have not had an outbreak for 2 months, but I am still continuing to get them. I am at wits end on trying to clean out my system to get rid of this nasty unforgiving bug. HELP!!!
Tonya
Reese // Jun 4, 2007 at 4:34 pm
My boyfriend has been going to the doc for about a year. First his infection was strep, then staph, but now doc claiming its not MRSA. Well wow, whaddayaknow, I started having boils under armits after shaving with his razor and LOW and BEHOLD, I been diagnosed with MRSA. What is going on??? Can anyone help us??? Were scared to death. I personally think his doctor is an idiot. We been following his directions for almost a year. NOW WHAT?
Keys Cat // Jul 31, 2007 at 8:21 am
I had Necrotizing fasciitis (the flesh eating variety) I have been clear of MRSA now about 2 years, I would have been DEAD if not for this group, and their insistence that I see an infectious disease specialist. I had to educate myself, and my doctors. The first hurdle is to get them to test for MRSA the next is to get the correct meds, realize they may not be up on the latest info.
My second Dr. put on the correct regimen of drugs, told me to wash with Hibiclens, but only under the arm pits, and the groin. Well folks this is what I did and it worked for me: I washed my entire body in Hibiclens, (being very careful as it can blind you and ruin your liver if ingested) including my hair! that’s right my hair! (I live in Florida and I had been wearing a pony tail every day to work that stayed a bit damp) I washed everything I came in contact with, in hot water with bleach whenever possible and I did not let ANYTHING touch my body more than once with being laundered, ( like sheets in bed my robe, etc.) I laundered every fabric in my home. I scrubbed down my leather sectional, and refurbished the leather, then placed throws on top. (so that they could be laundered) I mentioned to my Dr. when he was amazed that I was clear of this infect (after only ONE round of the correct antibiotics) He thought I had gone a bit over board, said MRSA doesn’t stay viable on surfaces, only on the body! Well I said to him “it can mutate, why take a chance?” I also informed him that as women we will ALWAYS wear a fresh pair of panties but that it is common to wear a bra more than once, and that could be a source of reintroducing the colony onto the body. I suggested that he advise his patience to follow my regime, as it had worked for me. Now I see in this months Readers Digest an article and low and behold! the advice is given to launder EVERYTHING.
I may have going over board but at the time I was having these issues my elder parents were coming to stay with me and my daughter was pregnant, I did not want to co-infect any one! I didn’t. They are all healthy, and I am a proud Grandma. So keep the faith! Educate yourself, don’t take for granted that your physician knows everything (they can’t) and some are just BAD. I still do wash with Hibiclens once a month or so.
Lee Rhodes // Aug 23, 2007 at 9:08 pm
I came upon this site by accident..I searched for long-term effects of MRSA infection. A year ago my daughter contracted MRSA at a nursing home where she worked as a student nurse. A month later I developed an infection on my face. Two months later my husband developed it in his nostril. In the local Baylor hospital we were virtually ignored by the nursing staff too afraid to even come in and read the vitals. My daughter took it upon herself to drain the our infections. I will never forget the risk she took herself, in her health as well as professionally, but she had researched more on the treatment than the hospital staff. We have not had re-occuring infections, but seem to have “aged” quickly, and have very little tolerance for any type of infections. My husband is diabetic, I worry about his future health with MRSA.
Dia // Sep 9, 2007 at 11:11 am
I was diagnosed with MRSA in the end of May after I had these mysterious bumps that were very paianful since January. I was put on Doxycycline, Rifvampin, Ointment for my nose, and a Anti-Microbial wash. Those who have taken the two oral medications know, as I know, that they rip your stomache apart REALLY BAD. Anywayz, I took it after I was diagnosed and the bumps went away…for about 4 weeks, then I had to take the medicine again, then the bumps went away…for 4 weeks and came back. Notice the pattern? I was diagnosed at the end of May, it is now early Sept and I have had my 4th outbreak in roughly 4 months. The bumps get very painful and the medicine make me so sick. My doctor didn’t give me too much information on the disease and has now decided to stop filling my prescription because I haven’t been able to see her (I live 400 miles away and I have no health insurance). I am not sure how I contracted MRSA…the only thing I can think of is that I shared an apartment at school with 3 not-so-clean people. Even though I washed my hands before doing anything, who knows what they could have spread around. Mostly, I am looking for some guidance, maybe someone to talk to who can give me a little more information. I feel so left-out as far as information goes. I read up online and asked my doctor a lot of questions (she was not much help), but I feel I need to know more. I have been able to live with 4 people and keep them all MRSA free because I am very careful. What else should I know?
James Pate // Oct 6, 2007 at 8:51 am
Dia
Go to WWW.StaphWash.com Send home address by e-Mail. I Wll Mail you a tube of StaphWash to You FREE
Read Carolyn’s Story, shes my sister.
James
tizzy // Oct 6, 2007 at 6:50 pm
I was just diagnosed with mrsa in my sinuses. I have a long standing history of asthma and severe sinusitis and have had 4 sinus surgeries. My dr. is having me start on an irrigation schedule involving an antibiotic ointment mixed with a saline soltion. I’m having alot of anxiet about this…I’ve been fighting pseudomonas for 3 1/2 years and now I feel like I’ve “graduated” to this.
Tammy // Oct 12, 2007 at 1:57 pm
Hi. Just wantted to say How great this site is. I was dx with MRSA last week and I have learned more about it on line then with my own Doc And would like to learn more. So if anyone would like to share info with me that would be great. I need as much info as I can get (well I think we all need as much as we can get). Plus I all so have Crohns disease and a blood clot disease call factor 5( Think I am falling apart Like I said i am new to this disease so any and all info would be great so please if you would like to talk e-mail me Or I.m me . And again I think sites like this are great. With out them many well at least me would be lost. Doctors look at me like I have 10 head give me med witch are CLINDAMYCIN,CIPROFLOXACIN and a ointment called MUPIROCIN. does this sound rigth to anyone? Please if it does not let me know And tells me the boilel i have looks like someone stabed me (Thanks doc ). so that tells you how much help he is . So THANK YOU all for the help you have given me PLEASE e-mail me Have a good Day
Kristin // Oct 17, 2007 at 12:07 pm
I was diagnosed with MRSA Staph in August in my left breast. My general practioner gave me Cephelex (spelling?) and told me to go to the ER if the infection didn’t clear in a few days. Well it didn’t, and I ended up in the hospital five days later. The infection hurt so badly, but the hospital would not admit me even though I told them I needed IV antibiotics per my doctor’s direction. Anyway, they finally admitted me and a surgeon drained the abcess. The surgeon then gave me Lavequin, followed by Amoxicillin, then Bactrim. None of these worked. I got another infection a week after the first surgery, but waited almost two weeks thinking the meds were going to take care of the infection. I was readmitted to the hospital on 9/20/07 and was on several different kinds of antibiotics that really made me dizzy and sick to the stomach. I was on Vancomycin and something called Roxyfloxicin (the nurse called is Roxy Floxy as a nick name), and a third antibiotic. The infection finally got better, but I personally believe it was God who healed me and not the antiobiotics. I was released from the hospital on 10/2/07, and have been on Zyvox, which has horrible, horrible side effects. It makes me dizzy, nauseaous, forgetful, incoherent, and just “sick”. I’m can’t wait to be finished with this dose.
I was wondering though, is it possible to give spread MRSA to my family members? From what I’ve read so far, it’s seems like I can. I’m concerned for my children, especially my 17 month old. Any help and suggestions would be greatly appreciated.
april // Oct 19, 2007 at 2:27 pm
I had been caring for my 77 year old grandma for 4 years full time. She had been complaining that she had the flu all of the time and she started to break out in sores in her mouth, vagina, and face. She had had staph infection as a kid and she said her symptoms seemed to be the same. I was taking her to specialist 3-4 times a week, but they didn’t know what was wrong, then lo and behold I started to get symptoms , so I was going to the doctor. He told me it was depression and had me take antidepressents. I only got worse, and I had extremely painful joints and muscles, boils on my face, and a very difficult time breathing, lethargy, and depression from my symptoms and also watching my grandma’s health go down the tube. I wrote the symptoms down, and gave them to my doctor, which of course he said all my symptoms were caused by depression. About two weeks later granny called 911 for “the flu like symptoms”, went to the hospital and died. I was admitted the next day and sent home with xanex. I ended up having to go to a doctor 50 miles away, ands thats when I was diagnosed with staph and prescribed two sets of antibiotics which made me very ill. It’s been 4 months since this happened and I am concerned about the long term effects. I am interested in anyone else’s story and feelings about the doctors possible down playing or covering up this superbug. I can be reached at
Mike From Lodi CA // Oct 19, 2007 at 6:43 pm
I’mjust like the rest of you…I was diagnosed MRSA+ two years ago, but I really think I’ve had it much, much, longer.Ican remember having these giant pimple like things for a long time, and although they healed on there own (after a good amount of time) they’ve never quite gone away… I’ve been in and out of the Hospital numerous times, the worst is when I had gotten it on my right knee cap and after thinking i had just hurt my knee 2 weeks later I was in HELL!!! My Knee down tothe top of my foot had swollen 3-4 times there normal size and getting up to use the restroom one nite I found not only could I not put my weight on it I could’nt put any pressure on it at all… I remember my wife taking me to the ER at 2:00am and her stopping at all the red lights and just the pressurefrom her applying the breaks was unbelievable I thought I was going to die from the pain… alas, I’m still here!
I feel for all and any of you, that have had to suffer with this disease. I thank GOD to be alive, but I still don’t feel like the person I used to be…
matt // Oct 21, 2007 at 2:08 pm
You know, I sit here daily and think of what this infection has taken out of me . I cry on a daily basis and hope to god that this infection isn’t the death of me. I also sit and think of what can be done.The answer I think is educate we (the people with this bug) need to put pressure on local government and make sure the people that we interact with on a daily basis know just how serious this epedemic really is . Yes this is an epedemic, people are dying everyday. People are sick everyday. This nonsense has to stop. we need to do something to help other people from contracting this infection.we need to educate. If anyone has questions, ideas or just need support from someone that has had this infection for 4 years now , than please feel free to e-mail me at
James Pate // Oct 21, 2007 at 5:57 pm
Matt, you are so right. We have got to let the people know how wide spread this bacteria really is. And, @ WWW.STAPHWASH.COM “saveing limbs & lifes”
Heather // Oct 21, 2007 at 7:48 pm
I am a 24 year old woman. I was traveling last week for my career (Marketing Representative) and many times when I stay in hotels I get pimples from the sheets. I woke up Thursday morning with a zit close to my spine in between my shoulder blades. When I noticed the wound becoming infected I started to think that it was a spider bite (due to the pain).
Friday my infection was a little bigger with a white and yellow head, the tissue hard underneath, and very red skin all the way around it. I went to a Convenient Care center (since my doctor was unable to see me) and the doctor tried to pop the infection, but was unsuccessful. So she decided to just prescribe me antibiotics. I told her that if she wanted to cut into it to get a culture she could. She said that I should be just fine with the antibiotics.
I have now been on the antibiotics for three days and I’m in a lot of pain; the wound doesn’t seem to be healing at all. I drained it today and a lot of bright yellow discharge came out. I plan on going to the doctor asap tomorrow because from all of my research I do believe it is MRSA.
I’m very scared about the treatment, especially since it is so close to my spine. Can anyone tell me what is the usual treatment in this matter? Also, is this something I will have to live with the rest of my life? Since I get breakouts so often this scares me. It especially scares me with all of the news stories of people around my age dying from it.
Krista // Oct 22, 2007 at 8:02 pm
I live in southern WV and my 15 year old daughter came home from school today telling me that there have been a few cases of MRSA in our county. My grandfather has also been fighting it for almost a year.
I am 36, insulin-dependent diabetic and also have lupus. My immune system is VERY compromised. To make things worse I am also a “skin picker.” The past month I have felt so weak and tired and have no appetite. I have a sore on my lower back, one I can’t see to pick. I don’t even know where it came from.
Is it possible I have MRSA? Is there a blood test for it? What can be done since I have so many other problems?
sick with the bug // Oct 23, 2007 at 10:18 am
I have started a facebook page and group to help all of us with this terrible infection . I want everyone to feel free to join this group and e-mail me with stories thoughts and issues.
all the best to everyone and I hope everyone gets the help they need and deserve.
iamsick withthebug on facebook
and the group is people with mrsa
mike // Oct 23, 2007 at 8:45 pm
I have been living with the virus for 1 year now. I got it from getting a tattoo, I’ve had 3 out breaks so far and i hope no more. But I came up with a pretty good solution for getting rid of the boil, (now dont forget I’ve had3 out breaks) but I ended my 3RD out break fast, I bought 91% alcohol, new band-aids and a new tube of neosporine . And got to work, 2 times a day I would remove old band-aid and wash my hands, cleaned it with the alcohol,and then opened a new band-aid , put neosporine on the band- aid(also with the help of bactrim witch I got 4 days after the fact) the boil is gone as well as the other pimple looking ones. Now ive done this for 6 days before I saw a doctor, because I wanted to see if I could get rid of the boils with out bactrim and it was working, I just got the bactirm to be on the safe side,and my doctor said that he didn’t think I needed it what I was doing was good and to keep it up. So I hope this can help people resolve a problem.(but then everyones different) There is still one thing I want to know, what can I do to prevent future out breaks from returning.OK now im going to tell you about my 2nd out break I did nothing about it for 3 weeks, and damn I was in pain. I had to go to the hospital to get it lanced and once that was done my arm felt great. It healed nicely accept for the scar it left but whatever. I am now going through my 3rd out break and thats when I used what I wrote about previously, AND IT IS WORKING GOOD TOO. So please feel free to try my idea it just mite help you like it helped me
please comment on this feedback is welcome
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