MRSA Support

I have read all of these. This is so terribly tragic. I am not giving any of you information for my benefit. This is something all of you should know. Please do your research on the mangosteen. Please go to pubmed.com and put in xanthones and mrsa or Mangostana and mrsa. Do your research. Buy the best whole fruit pureed mangosteen out there…the first on the market. The doctors are really stumped on mrsa. Do your own research.

The doctors aren’t stumped, they know what this is and they are part of the problem. An entire hospital of doctors have been discharging patients with MRSA without informing them that they have it. This helps spread it since if you don’t know about it, you won’t be taking special precautions.

I do not understand how a doctor can claim to be a healer, when he deliberately allows a patient to go home with a potentially life threatening disease and does not inform him or his doctors so that it can be treated.

Shame on the medical profession that is constantly downplaying these infections as if they were nothing to worry about. They aren’t for those who have died, or have become debilitated by either the infection or the cure.

God Bless you all.

My 36 year old son was diagnosed with MRSA September 2007 on his leg. He has been to the emergency room and Health Dept. after six outbreaks on different parts of his body. They have put him on four different kinds of antibotics. He is allergic to Bactrim. The MRSA keeps coming back. He has another outbreak again on his leg. Everytime before each outbreak starts to heal it seems like it attacks his upper and lower teeth starting every evening and continuing throughout the night for about a week. Then a month later he’ll get another MRSA sore and the cycle starts all over again. He tried to tell the emergency room today that it effects his teeth but they said that was rediculous and he was laughed at. The DR. said she never heard of that happening. If anyone else has experienced this with their teeth please let me know. There has got to be a sollution and a cure.

My name is Cricket and I am 43 years old. I work in a college and am quite a busy lady. Around Labor day I fell in a small drain pipe and got a puncture wound. I had to go to the ER because they thought I broke my fibia bone. Fortunantely, I did not break anything. I had a severe sprained ankle and some soft tissue muscle trauma. While in the ER the doc said he was not going to do anything with the puncture wound, wrapped it with an ice pack and an ace bandage (never cleaned it) and sent me on my way. Well, about two weeks later I got a very sore bump on the back of my leg that got pretty bad and then 2 more bumps formed on my armpit. These bumps were boils and I had never had anything like that before. I went to the local doc, she looked at it and said, “it’s red so I will put you on antibiotics , as far as the boils on your armpit… just poke them with a needle (I did not take her advise on that). They came to a head and cleared up with the antibiotic. Then in January (2008) I got another boil on my thigh that within hours was growing and my leg from my thigh to my knee was red and swollen. The ER doc (different hospital) gave me IV antibiotic and scheduled me for surgery the next morning. I felt terrible. The fatigue, pain and headache that comes along with this is awful. I feel alone. My family is tired of this. Just last week I got a skin infection on my armpit and am now back on an antibiotic. Does this go away for good or is this something that I must learn to deal with? I have used all of my sick days so I just push myself. If anyone feels the way I do please let me know. I would greatly appreciate any input and/or support.
Thank you.
Cricket

I am recovering from MRSA in my spine and eventually ended in my abdomen. I’ve had 2 surgeries, 4 hospital stays etc. etc. etc. I still have back pain and my right leg is numb from the knee down. I’m back in therapy and haven’t been able to work much. My problem is I am a nurse and can’t hold up to 8-12 hr. shifts. I am also so paranoid about touching anything out of my house. I would love to talk to someone who has had this. I am so thankful that I am alive and not paralyzed, as was predicted several times, but am still dealing with after affects. Cancer patients etc. have counseling and support groups but I have not been able to find anything. Just want to talk to an understanding ear.

I have had 6 surgeries for MRSA and am still waiting to see if anything else turns up the medication Zyvox helped me greatly it very expensive abt 100.00 a pill, igot mine free of charge thanks to help from my surgeons office. if anyone else would like help obtaining the medication free or at low cost please contact me at kasi358@yahoo.com and i will try to help you. i am waiting for 2 of my surgical wounds to heal it has been close to 3 months but I have found ways to help them heal and i have been fortunate not to pass it on to my husband or children. keeping them clean and covered is the primary thing if i can help anyone else with this please dont hesitate to email me. I’ll be praying for you all

has anyone tried colloidal silver to treat mrsa? not that I know cause I dont but Ive heard that its pretty unfriendly to bacteria and virus

There is a pretty good support forum called immunesupport.com I have posted there for over 5 years. Many have immune illnesses, fibro, CFS, etc but there are many different areas to post. A very supportive group. You might suggest they add a section for MRSA

sheree,

Well i hate to tell you that once you get it, it is not going to go away. i have had it for 4yrs now and it is very painful and keep getting them. ask your doctor about zyvox. it is a very strong antibiotic but it works.. it did not work for me because i had a allergic reaction to the medicine. the pills are very expensive almost 100 dollars a pill. but it is worth a try. Most people get it from a hospital if the have just has surgery or been in prison. keep the wound covered and you dont need to touch it or you will get it also. i have given it to everyone in my family and it is not fun. good luck and if you have any questions please dont hesitate to write me about any questions.
cletterman01@yahoo.com

The passage below was left to me on my email. I just wanted everyone to see it. First off I am a 100 percent disabled vet because of this. My doctor in Infectious disease has been working with me and I have his personal phone number in case of emergenicies. I would like to know why people think that doctors dont know what they are talking about. I did my research on what that person wrote and found nothing new. I find it offensive that someone can write this kind of email to someone who is severely suffering from MRSA. I have lost my job because of medicine prescribed by a doctor because of it. I have a wife and three children to support. Dont worry it was wrongful termenation and that is being dealt with. I thought this website was for people seeking help and assistance and support, not to be told they are sick of hearing our stuff. Please let me know if you guys think I am wrong. MRSA is killing more people in the US right now than AIDS is. That should tell you something.

Cletterman,

Do your self a favor. Please go to my websites below. Do your research. Go to http://www.pubmed.com type in xanthones and mrsa. I would be glad to send you more info, but it is better that you do it yourself. I read these all the time and it makes me sick. This is what we get for running to the Doc for every little thing, and the dopes dispensed anti-biotics like candy. Now they have there freaking arms in the air, like…..what do we do now? Sorry, I am not that young. I knew what they were doing way back when. Do your research and get back to me. I am not an opportunist! I started using this 3.5 years ago because of my fibromyalgia. 6 mos. ago I went into remission….it is gone. I have to go now. This 60 year old Grandma bought her self a kayak. Gotta get on the river.

Julie Ottaway

My husband caught MRSA after a knee surgery at a Air Force Hospital, He has atleast 2 outbreaks a month. He gave it to my 2 yr old son, Also he passed it on to me. Our whole little family has it now, Our insurance is about to drop coverage on us because my husband got out of the Military, We all have to go do the little surgery thing at least once a month, taking off work traveling to the hospital 2 hours away.. I dont know what to do. I’m getting so fed up with this all… One of the doctors I seen told me to seek a Medical Lawyer, Is that the right thing to do?? Would I have a strong case??

Erin,

I caught MRSA from walter reed army medical center in washington dc. It took me three yrs to recieve disability through the VA. Email me and I will help youll out on how to get the VA to get your husband 70 percent disability. It is a tough fight but It pays off in the end.
cletterman01@yahoo.com

Chris

What are all of these messages about Sex sites doing on this board? I am getting a lot of notices and the emails are offensive and certainly not relevant to the serious issues being discussed here. It appears that a bunch of children are abusing the site for their own agendas.

Shame on you guys. MRSA is killing people and you are sending emails about sex pictures etc.

I went on vacation with one of my friends and her famliy we had so much fun but I had gotten these things on my legs no biggie we thought they got worse and worse and worser after doctor after doctor and a stupid dermatolgist my mom decided to make me to SIUH e.r. In november They confirmed I had mrsa and sent me home not knowing how bad it was I was home for two days b4 I was rushed back I was in the ICU for about 4 weeks not knowing which day could be my last the infection was officialy in my blood I was told you have a high chance of dieng this was 2007 I was only 13 after I finally made it out of the hospital 7 and a half weeks after I was admitted I went home and after a week or 2 I got a biopsi done in the operating rooom I had gotten MrSa again I was allready gonna stay in the hospital b4 they found out that I had it again I was rushed up into ICU to find out the infection was back and worse 2 weeks later still in the hospital I found out I had a rare auto immune disease 2 weeks later I was discharged I just turned 14 in jul y 2008and now under going kemo I have had 9 surgeries one for my appendix I have about 27 doctors and I have been to more hospitals then any should have to be to

Chris,
I contracted MRSA in Iraq in July 2006 and since have been hospitalized and had 16 boils. I am a reservist, and if I collect disability, then I lose out on a lot. What would you suggest? Now, I read about your other alternate cure, and I am not too privy to all that, but I am tired of going through this, and I am super scared for my child. Does anyone know how many people in the military catch this because the enviorments we are put into? I am so pro-military, I love my country, but our soldiers, sailors, and marines are getting this way more often than the public eye has seen and they are all getting it in Iraq. How can we do our jobs, if we are battling our own bodies?

Julie,

Thank you for your post on here. I did my research and I think I am going to stick with the doctors. I also see that you started that stuff 3-5 yrs ago and went into remission. I am glad you told me that also because it obviously came back. I will take my chances as a 28 yr old.

Chris

Hello I caught MRSA in Iraq. I had what I thought were a couple of ingrown hairs in my left groin. I’m a gunner on a hummvee and had to wear a restraint strap to keep me from getting blown out of the vehicle. This strap rubbed me raw in the 120 degree heat and all the dirt and lack of hygenie. The trouble by the time I thought there might be a problem mrsa had started boreing into my fatty tissue. They operated on me in Mosul I had a void that held 9 yards of packing They put me on a medivac I’m now at Walter Reed I have had 3 outbreaks from june 20 08. Will the VA pay me for this? I have had 9 surgeries my groin area has 9 large scars and nerve damage Thanks For any help

im so happy that ive finally found other people who have been dealing with this disease. my husband and i have felt so alone. for the last 2 and a half years our kids have been through at least 30 (no kidding) infections. it started when Autumn was only 2. she was already potty trained and for some reason had gotten “diaper rash”. the rash slowly turned into several clusters if the biggest pimples id ever laid eyes on. i was concerned and took her to the doctor who promptly told us it was mrsa which was confirmed with a culture. he told her to give us the antibiotics and disinfect everything she touched wash everything and not to have skin to skin contact with her sister. we did all this for 10 painstaking days and the doctor told us she should never have it again. no less than month later it was back, this time worse doctors gave us more antibiotics and told us to keep up the cleaning. i was pregnant at the time with our twins, and this was all very stressful. i didnt understand it. so i did research, what i found was terrifying. still doctors told me not to panic. we went through this with Autumn for the months up to Gabbys first birthday which was ruined because we found mrse on her and she got so sick with it. at the end of june my twins were born 3 minths early. we told the doctors in th NICU about this mrsa nightmare and feared for the twins, they told us not to worry that it was a steril inviroment. we washed with surgical soap every day before going to see them, i keept our house disinfected daily and was happy that neither of our big girls had had anymore infections. one morning after the twins had been in the NICU for 2 months i got a phone call on a day i decided to take a break from the hospital, the twins had MRSA!!! they both got very sick, they were premies!!!!they were reintubated and had cardobrady’s constantly. (they’re heart would slow and stop) this was almost too much for they’re little unprepared systems. they both made it through and stayed in th hosptal for quite some time. meanwhile at home the other 2 began another battle of their own. later we found out that the strain of mrsa the twins had wasnt the same as the other 2. a nurse in the nicu had not properly washed her hands before touching BOTH twins. the week the twins came home gabby got violently ill with mrsa and went into the hospital. we alomst lost her. it was the worst time of my life. since then autumn has gone into the hosptal with it and just last friday we had to take grace one of our twins now 18 months old into the hospital, for her with her still weak system it was another of those desprate times we were very afraid for her, shes home but still struggling. we were told by the doctors here in northern michigan, that they’ve never seen a family with this many cases and so close together and on top of it the infections get severe. i cry for my babies i cant take watching their pain. so much pain and the fear in their eyes they look at me for help when nurses or doctors come near them. they cry for each other, and no one has answers for us they just keep telling us they’ll grow out if it. i do everything everyday, bleach my home top to bottom, wash cloths towles rags anything we use, touch ….all of it! this last round, autumn had it all over her butt and vagina lesions the size of ping pong balls, grace’s left thigh was 3 times the size it was, and gabby had a quarter size on on her belly. im a nurses aid, trained to deal with many patients at a time but nothing, NOTHING was like trying to see to 2 of my kids at home and going to the hospital to see grace. my husband lost a week of work and im worn to the bone with pain, worry, and not finding a single answer. at least ive found this…..other people dealing this the same terror of a disease no doctors seem to know enough about. i wonder, will they keep telling me mu kids will grow out of it when one of them dies?

i went to the doctor for a simple in office surgery, 2 days later, it was worse so they said to go back to the surgeon – he said i have to have the surgery again under anesthesia, so i had to be admitted – they put in a catheter, which i am embarassed for the nursing staff because it was like i had to give them an anatomy lesson! needless to say, the catheter was painful – and they let me go 2 days later with the catheter. 2 days later, i was worse yet again! i got another surgeon . . . one more surgery, but they tested me for mrsa because i had recently been in the hospital (theirs) – 3 days later, they tell me i have mrsa in my urine AND my nares, and send me home on cipro – i take it 10 days, and they test me again . . . still positive! now i have a damn picc line; vancomycin 2 x a day. they keep telling me my levels are still low, does anyone know if that means the antibiotic is not working? this is turning out to be a nightmare!!!!!! tomorrow would be my last day to take it – it’s been 3 weeks on it, this started in january and i just can’t take it anymore!!!! i’m testing tomorrow and i’m so nervous i am not going to be done . . .

I got blood borne MRSA about 5 years ago.Since then I have developed so many heart and lung + thyroid problems and copd .Any connection? Thanks and good luck

I got put in the hospital a few months back for a falicular cyst. The hospital out here lanced them and ended up packing them which apparently was a mistake. I ended up really sick right before i had to see the follow up doctor. When i got into his office he took cultures and told me that because of the packing and not letting the incissions breathe they ended up breading a severe staff infection which ended up breading Mrsa. I have had problems ever since then. I get rashes that look like spider bites. They scar over. From what i was told it will never go away fully. I am 23 years old and everytime i have been to the hospital since with any medical condition they have put a red band on me that read mrsa and i was put on isolation. My follow up doctor said it was medical malpractice but according to every site i have looked at i apparently cant sue. This hospital has had 27 other cases similar to mine that ended the same way. What i would like to know is how come i cant sue when they are the reason i now have a life threatening disease. I was healthy before this. I have been hospitalized multiple times since because the mrsa comes back. To me the doctor who gave it to me should not have a license and the hospital should have to pay.

UGH. It is SO HARD to read some of these, because I am SO angry that doctors neglect to recommend things that will keep your MRSA in check! People, look up Staph-A- Septic, Manuka Honey, Honeymark, Immune boosting herbs and read anything and everything you can about how to strengthen your system against this thing! Go to a doctor in Integrated Medicine, too. They draw from both conventional medicine and herbal/vitamin remedies. Don’t let MRSA clobber you like this. There are many things that can help- you just have to find the right thing for YOU.

Praying for you all!

Jennie